Wednesday, February 13, 2008

Sibling Love


Nico climbs into Nevaeh's bed every morning. He loves to snuggle with her. She loves it too! Here, you can kind of see her sleeping wedge (for her reflux), and how we've had to be creative... layering it to keep her from pulling on her tube, and to catch leakage, etc... Notice Nico's nearly-gone eyebrow. :(

Big girl in the high chair!


Even though she is not eating, she loves being a part of things during meal times. She is so social, and refuses to be left out!

All dressed up for church!


8 months old in a cute little outfit that Nana & Papa gave her for Christmas.

Monday, February 11, 2008

Swallow study update

Nevaeh had a swallow study (x-ray) done today. They tested her on 3 different consistancies of liquid, thickening it to see if it would make a difference in asperation. Turns out, she is still asperating, but she has improved. So the plan is to give her the thickest consistancy mixture of formula & rice cereal orally - 5 to 10 mls with a syringe twice per day. We will do this for about 6 weeks, and if she appears to be doing OK, then we will have another swallow study to consider increasing her oral intake. So, while these weren't the exact results we were hoping for, we are encouraged that she is making progress. And with the extra food that she is getting, we are hoping that we might be able to drop the 3:30 AM feeding before too long!

Before lip & nose repair

Before lip & nose repair
This was the NAM device the poor thing had to wear, & also the NG tube

Before lip & nose repair

Before lip & nose repair
This was the actual day of surgery